At a recent meeting that I attended it was reported by a nurse that one of her patients with advanced prostate cancer with only a PSA recurrence and lymph node involvement on a scan was rejected by their insurance company for reimbursement for Provenge. The insurance company indicated that to pay for the treatment they [...]
It is with great sorrow I must share the news of the death of John Arnold. John had been a long time contributor to the advanced prostate cancer support group. As he approach the end of his life and decided to enter into Hospice Care he, in his typical unselfish way, let us know that [...]
My very dear friend Fred who is a 20+ year prostate cancer warrior recorded this video. He has been on chemotherapy this past year. Fred is an activist who has been fighting on behalf of all of us. Thank you, Fred. I just thought I would share his video at: See my friend Fred Joel [...]
Another small confirmatory study of acupuncture to treat the side effects of hormone deprivation (ADT) was published in the International Journal of Radiation Oncology. The study found that acupuncture appears to provide long-lasting relief to hot flashes, heart palpitations, and anxiety due to side effects of hormone treatment for prostate cancer. […]
A member of the advanced prostate cancer on-line group recently posted about his experience using the newly approved chemotherapy agent, Jevtana (cabazitaxel). His post included not only a report about his PSA response to the drug, but his experiences with side effects and a suggested method of controlling one of the debilitating side effect, diarrhea. [...]
For those who do not know, I moderate an advanced prostate cancer on-line support group. Members are both men with advanced prostate cancer and many of their care givers. There was a recent conversation I want to share about specific “off label” and “out of the box” treatment strategies, specifically about oncologists not knowing about [...]
Malecare has an on-line support group for men with advanced prostate cancer; their loved ones and caretakers. Today, there was a post on the support group where one of the participants shared their recent experience with Provenge, including some very specific recommendations for anyone else thinking of having the treatment. You can join us by [...]
Bronnie writes a blog, Inspiration and Chai, Warmth for the soul and body. A recent post on her blog deals with what she has learned about some of the regrets of the dying. I have received permission from her to re-post this on the advanced prostate cancer blog. We all know that having advanced prostate [...]
I have been asked why I spend time banging my head against the wall to try and call attention to the plight that men with advanced prostate cancer endure. My initial decision to get involved stemmed solely from both my frustration and my extreme anger that there were no support services for men with advanced [...]
I know, we all have our prostate cancer story where we are told how lucky we are that we have prostate cancer. The conversation goes on something like, “Oh you are so lucky, you have the GOOD cancer, you should be so thankful.” Then it is often followed up by something like, “My (father) (brother) [...]
