I had written, about a month ago, about my feelings of distress because it appears that after my greatly loved ‘vacation’ from ADT might be entering the its final stage. Well, it is true. Yesterday, I received the latest PSA results and it has continued to escalate. I am now at 0.11.
Yes, the number is still minimal, but it is increasing. This is its third PSA increase
(01/08 = <.04; 03/08 =0.06; 06/08 =0.09 & 08/08 = 0.11). I now declare that the cancer has decided to reestablish itself and remind me that it forever lurks in my body.The doubling time is also a concern. The current doubling time from June to August is now 4.2 months; it is aggressive just like when I had the recurrence.To add to my concern is a test called GFR Estimation. This is a blood test that measures kidney function, or its ability to filter my blood plasma. Normal range is >60, but in June it fell to 57 and now in August it is at 52. I do not know the significance of these individual numbers, but the trend is very clear.
At the same time, I had the prostate cancer recurrence I was diagnosed with renal (kidney) cancer and had my left kidney removed. It is not a problem functioning on one kidney, many people do fine with only one, but I need it to function. I have just sent the blood work to my kidney doc and will have a conversation with in short order.
As to the PSA rise, I am scheduled for my regular prostate cancer oncologist appointment on Thursday. We will discuss it, but I am going to delay restarting ADT. The complicating factor is the doubling time, it is shorter than I would have liked.
I am feeling unhappy about the situation. Both of these complications were very predictable, but I still feel sad.
Joel T Nowak MA, MSW
Very sorry to read this.
Hey Joel –
I have also enjoyed a 9 month ADT “vacation” and have made a decision never to go back on them because this is the best I have felt in the 4 year struggle with this beast.
We’ll see what my Oncologist recommends when I meet with him in 2 weeks. I know one thing for sure…ADT will not be on the table.
My PSA in May <0.01 In June 0.19 and my most recent one in July 1.97
Hang in there and keep fighting !!!
Joel, don’t lose sight of the relativity of your PSA reading and the level of cancer cells in your body. I really understand your nervousness about the creep.
I have advanced prostate cancer – stage 4 (or D) with a Gleeson score of 9. I have secondary bone cancers throughout my pelvis and spreading throughout the skeleton.
Upon diagnosis back in March, my PSA was about 1000 – at this level they don’t give the decimal places – and three months of ADT has reduced that to about 300. We are hoping for 100 in October.
Like you I have a cancer lesion on my right kidney but, as my treatment is purely palliative, they have no intention of operating as they figure I will be dead before the kidney cancer gets out of control.
I have been documenting my journey on my social comment Blog here. You are welcome to drop by and have a read.
Hang in there Joel, the world is not going to end tomorrow.
I just lost my husband 9 days after his 54th birthday due to recurrent prostate cancer 10 years after diagnosis and treatment with radical prostatectomy when he was 44 .I do not believe in this medical community as they have nothing to offer young men with this horrible killer. Oncologists have nothing to give to their patients but taxotere that does not work. they are so happy that they have one chemotherapy for this disease. All I can tell you God be with you men .
I am a 44 year old who was diagnosed 2 years ago. psa was 3216 at that time. reciecing lupron and casadex. psa came down to .09 then .25. Im freaked cuz I have to have another psa for my quarterly apt. with my oncologist. I am not sure where the road is leading however I know that noone gets out of life alive.I am wondering about immunotherapy. My cancer is a typical as it went to my lungs rather than my bones however my pelvic bone had slight irregularities. Im too young and too stubborn to leave yet but the fight brings many a sleepless night. Stay strong and fear not. God is on the throne