It appears that this year has finally caught up with me... last March - 85% of my home was destroyed in a flood. My son and I were cooped up in a hotel for 3 months and, as anyone who has been through something like that can testify - you spend days sorting through old [...]
My father was diagnosed with advanced prostate cancer when I was about 7 months pregnant with my son, currently my only child. Now, we are a family of activists. I in essence "inherited" our state prostate cancer coalition and perhaps the genetic predisposition to be an activist from my dad. My son has grown up [...]
For years, I’ve watched groups and individuals working to fight prostate cancer bite themselves in the butt. It’s fascinating… What leaves me speechless is the lack of compassion, understanding, and ultimate appreciation that these groups have for one another. All around me I see greatness, groundbreaking leadership, unique individuals that lend something precious and irreplaceable [...]
I recently saw a comment that "the word prostate itself is a turn off to men." OK... if that's the case, you're just not saying it right. If you're female, try a little breathy with a wink... if you're male, guy it up like you're in a locker room or something...What a ridiculous comment to [...]
When it comes to prostate cancer activists, one issue in particular has confounded me for years… that is, when I hear statements such as “we are competing against a lot of prostate cancer awareness and advocacy organizations.” As prostate cancer activists we have only one true competitor… prostate cancer. Any organization working to end prostate [...]
Everyone can do something to raise awareness of prostate cancer. When Michael Vinecki, announced to his family that he had sarcomatoid carcinoma, an especially aggressive form of prostate cancer his family decided that they wanted to do something to help find a cure and also to raise awareness. To raise their inspiring story click here. [...]
Musa Mayer a breast cancer advocate has written an article in the Journal of Clinical Oncology that will be of interest to those who work as prostate cancer advocates. The first few paragraphs are reproduced below. In the years since 1989, when I was diagnosed with breast cancer, the advocacy movement has matured, and many [...]
Senate Committee on Health, Education, Labor, and Pensions Thursday, May 8, 9:00 a.m. Witness Testimony Panel I Elizabeth Edwards, J.D., Senior Fellow, Center for American Progress, Washington, DC Lance Armstrong, Chairman and Founder, Lance Armstrong Foundation, Austin, TX Steve Case, Chairman and CEO, Revolution Health, Washington, DC Panel II Edward Benz, M.D., President, Dana Farber [...]
Hemo/Onc Today published an editorial about the status of prostate cancer research. The author, Donald L. Trump, MD compares the status of knowledge in prostate cancer compared to breast cancer. He says: Important progress has been made and new leads established in improving our understanding of prostate cancer and improving the care of patients with [...]
Faced with a cancer diagnosis, effective communication between doctors and patients is crucial. Yet, often, a doctor's style or time constraints don't meet the patient's needs. Other times, patients are too overwhelmed with the confusion of a diagnosis to absorb all the information they need. In the current podcast, CR correspondent Kevin Begos talks to [...]
