We’re wondering if anyone is using Jevtana as a treatment for advanced stage prostate cancer. We’re wondering what Jevtana’s quality of life impact is on patients. Please email me at info@malecare.org if you are using it …. do tell us what your Jevtana experience is like.
I am on jevtana, I was first on taxotere, then it stopped being effective, now I am taking my thirteenth round of chemo on Monday
its like the sixth round of jevtana for me, so quality of life huh.
I have two good weeks a month and two sick weeks a month, so I am sick half the time, the week following chemo is the worst
most important is to take a laxative and make sure you go poop every day, then do all the rest of the suggested support treatments pain pills etc…
you can still enjoy life, don’t give up keep fighting,
thanks
jack
After failing taxotere, and abiraterone, which is part or a two arm study, I was switch to cabazitaxel (Jevtana). I had 6 cycles now of Jevtana, and results show no progression at best, but PSA still lurking in the 600-700 range. QOL is tolerable; fatigue in the first week, no major gastro-intestinal changes, big decline in red blood cells and hemoglobin with each infusion, which has greatly impacted my QOL since I like to stay very active, lots of fatigue and shortness of breath, got 1 PRBC transfusion a couple of weeks ago which helped a lot. No hair loss as much as I can notice. This is pretty much what would sum up at this point the effect of Jevtana on my body and consequently my quality of life.
My father was given Jevtana on 10/19/2017 on 10/26 took him to ER and blood test showed WBC at .2. His doctor never scheduled blood draws to monitor his counts. Four days after the treatment Dad knew he would not continue the Jevtana treatments. He is 6’1″ and weighed a mere 145 before the treatment and 130 lbs three weeks later. I dont know if he will make it to Christmas. I dont think the doctor knew what the hell she was doing as we kept getting information from her that was contradictory to the information put out by the drug company. He was finally given a blood transfusion 11/10 and has been home since 11/12. The transfusion seemed to flush the rest of Jevtana out of him and he finally got some rest and has been doing as okay. However, the pain in his spine returned a few nites ago from the metastisis 2 years ago.
I started Jevtana on 1-4-2018. I guess you could say that my treatment is experimental because I was chemo naive until Jevtana, I am not castrate resistant, have not had prior Docetaxel and I am on Lupron and Zytiga. Jevtana was approved due to my neuropathy in my feet and it took creativity to get the insurance approvals to have Jevtana and Zytiga together as a first-line therapy with Lupron too. I do have several bone mets and have not received any type of local therapy as of yet.
My experience with Jevtana has been similar to Jacks. The first day or two after infusions I feel okay and then I am darn sick and lethargic for another seven days. After about dat ten I feel pretty good, baring the hot flashes from ADT. The good news is that my blood counts have been recovering really well, right before my next infusions. In the midst of the sickness, it’s hard to imagine the next infusion but by the time it comes around, I feel good so another infusion isn’t as difficult of a concept.