I have just received an update on Senator McCain's amendment. According to Senator Pat Robert’s office they need to hear from more individuals from Kansas on opposing #1482 (the McCain amendment)so if it comes up they can let the Senator know and inform his position. If you live in Kansas, have family in Kansas or friends [...]
Most people don't know the many advances that the Department of Defense Congressionally Directed Medical Research Program (DOD PCRP) has brought to the PROSTATE CANCER COMMUNITY. Did you know that the program is directly responsible for funding the initial development of three of the very new drugs we have available? The DOD PCRP is directly [...]
About one hour ago I received some good news from Zero pertaining to the Congressionally Directed Medical Research Program. The HAC-D report of the FY2016 Defense Appropriations Bill has the Prostate Cancer Research Program funded at $80M. The full bill can be seen here : http://appropriations.house.gov/uploadedfiles/hrpt-114-hr-fy2016-defense.pdf and the CDMRP numbers are found on page 273. The [...]
Malecare has been an active and early member of the Defense Health Research Consortium. The consortium currently consists of 47 different organizations, which educate and advocate for research Department of Defense funding for multiple different diseases and syndromes. The consortium’s goal is to lobby Congress to continue to and to expand support for the Department [...]
President Obama’s fiscal year 2016 budget eliminates all funding for the Centers for Disease Control prostate cancer program. Congress has the power to protect the CDC Prostate Cancer program. We ask for your advocacy to protect this life saving program. Please go to http://malecare.org/cdc There, you will find a sample letter, which you are welcome to copy whole or [...]
Between 2011 and 2013, the proportion of men diagnosed with intermediate- or high-risk prostate cancer, increased by 3% per year. Thank you members of the United States Preventive Services Task Force for realy blowing it and tapping in the nail into the coffins of American men. In a preliminary study the authors estimate that this [...]
The national men’s cancer survivor support and advocacy nonprofit organization, Malecare, protests against the proposed elimination of funding for prostate cancer at the Centers for Disease Control and Prevention. Prostate cancer is one of the most common cancers in America. Almost 30,000 American men die from prostate cancer every year. And, African American men die [...]
Cancer survivors have many additional problems in their life. I guess the most significant problem is that we have a life threatening illness. So, why are we forced to have to worry if our medications will be paid for or if we are able to afford to pay for them? When we are fighting for [...]
Traditionally, the FDA makes its regulatory decisions based solely on demonstrated safety and provable increases in meaningful survival data. The FDA asks, Will a new treatment that is being considered for approval be able to extend our life longer than the current standard of care? They also ask if it will extend our life is [...]
Doctors are not trained to communicate with patients. Now, with the onset of electronic medical records this problem has become worse. Many of them hardly even look their patient in the eyes; instead their faces are often buried in the computer screen and not on us. Since they don’t really know us, they stumble around, [...]
