We all must become a self-advocate if we are to survive and prosper with advanced prostate cancer. Self-advocacy gives us a positive experience that provides a true sense of control in a time when we experience only uncertainty. Self-advocacy can be very simple. It can be as simple as asking more questions at your doctor's [...]
At this moment, the United States Congress is in session and actively considering an economic stimulus package. It is vital that we join together with many other cancer advocacy organizations and support the inclusion of the proposed $1.9 billion allocation to the National Institutes of Health (NIH), the federal agency that oversees cancer and other [...]
Normally, I don't duplicate my postings from internet listservs, but today I am going to make an exception. There was a posting today on The list called "Prostate Problems." The thread involved my post about the recent decision from the Social Security Administration to place a number of diseases on an accelerated approval list for [...]
Musa Mayer a breast cancer advocate has written an article in the Journal of Clinical Oncology that will be of interest to those who work as prostate cancer advocates. The first few paragraphs are reproduced below. In the years since 1989, when I was diagnosed with breast cancer, the advocacy movement has matured, and many [...]
NCI’s Office of Advocacy Relations (OAR) will host its third teleconference, Understanding the Role of NCI’s Clinical Trials Advisory Committee, on Wednesday, May 21, from 2:00 – 3:00 p.m., EST. The featured speakers are: Dr. Sheila Prindiville, Director, Coordinating Center for Clinical Trials, NCI’s Office of the Director; Ms. Susan Leigh, Advocate Member, CTAC; Col. [...]
Federal Advocacy Update that you need to become involved with: There are three resolutions that NPCC is currently educating legislators about: H.Res 672 is sponsored by Doris Matui's office (CA-5) and it supports the goals and ideals of National Prostate Cancer Awareness Month in September. This resolution recognizes the main issues surrounding the lack of [...]
The National Coalition for Cancer Advocacy recently sent out an email asking advocates to contact their representatives at their district office while they are on their spring break from March 15 – March 30. Specifically, they are asking you (and I am begging you) to request your representative to get behind H.R. 1078, the Comprehensive [...]
