You are not alone. Almost two hundred thousand men are diagnosed with prostate cancer in the United States, every year, but only 30,000 men die from prostate cancer each year. Rarely does any man die within the first few years of his diagnosis, no matter what, if any, treatment, he has chosen. You now have thousands of new brothers. We’ve all been biopsied. We’ve all heard some doctor say, “You have prostate cancer.” And we’ve all gotten a little or more confused about the variety of treatments available to us. Truth is, around prostate cancer, you are a mirror of each of us.
Malecare has been active since 1997. We’re here for you. Every one of us heard our diagnosis and spent our first days and weeks fretting about it. Hearing a cancer diagnosis changes your life. If it didn’t make you feel that way, you would not be human. And being human is good.
Being human, and, being a man, means taking charge…finding out as much about your disease as you can comfortably digest.
If you’ve been recently diagnosed, been affected by a loved one’s diagnosis, or need more information to help you understand prostate cancer, use this website as your main resource, as often as you need. Here you’ll find the latest on diagnosis and treatment, risk factors and screening, and a host of other topics—including complementary therapies, quality medical care, and life after treatment. You’ll find hints and lists of questions that other men and their families have written, from their own experiences. You’ll also find lots pf the usual educational materials, interactive tools, and support groups.
And, feel encouraged to contact us with any questions. There are lots of us volunteering with Malecare to help. Some are even Doctors and other clinicians who are diagnosed with prostate cancer.
So, ready? This is the start of what you need to know.
First: Make no decisions until you are comfortably informed about your situation. … read at least some of the patient and doctor written articles about prostate cancer symptoms, treatment and causes on malecare.org.
Prostate cancer tends to be progress slowly. There is usually no need for urgency. But make no mistake…some men do die from cancer. It is vital to take time to understand what you can do to save your life.
Second: Ask questions about your cancer diagnosis and cancer treatment. Answers about cancer won’t find you, you have to ask. Please don’t assume that your doctor will tell you everything that you need to know. There are lists of questions for you to ask about cancer in this website.
Prostate Cancer treatment may extend your life, but might also cause collateral damage or side effects, such as incontinence or impotence. Even the best treatment choice may have consequences you probably won’t like.
The prostate is surrounded by the nerves controlling erections and lies close to the bladder and bowel, so there are significant risks of damage during treatment to sexual potency, continence (ability to control urine retention) and bowel function. Learn about the difference between cancer cure and cancer treatment.
Third: Speak with other guys at a prostate cancer support group. Hear our stories. Put your natural fears into a better perspective. Cancer treatments, symptoms, diagnosis, and causes can be confusing…we are here to help.
Most men expect their doctor to recommend whatever treatment they need. They are surprised and anxious when the doctor discusses several possible treatments and says the patient has to decide for himself which one to choose.
Think about speaking with a urologist, a radiation oncologist and a medical oncologist before making any decision about treatment, to get a balanced picture of the benefits and drawbacks of all the cancer treatment options available to you.
Millions of men are diagnosed with cancer… there is a lot you can learn from us.
i just find that my dad has prostate cancer
I have been told that I have p/cancer gleason of 7 and psa of 7.3. I had a TURP in 2008 and now this has poped up…as a result of a current PSA from 2009 of 3.5 to 2010 of 4.7 then 2011 (march) of 7.3…..My Urologist suggested going on Avadart for life to escape surgery and a second opinion is pushing the DiVenci robotic surgery or Radical surgery. He said that the gleason score of 7 was middle of the road but aggressive….. I am so damn tired of all of the other things since I turned 55 (Mitral Valve surgery “repair from auto accident”) TURP in o8′ then hernia surgery (laproscopy) in 10′. After reading Johns Hopkins “white letter” and all of the “other” stuff I am about ready to say screw it! Not do anything? Do I want to go from feeling well at 66 –to pissing my pants, not being able to ever making love to my wife and have a colostomy bag hanging on by ass? NO! The next step is taking “Harold” 16 gauge to the woods or sweet pea 38 out behind the barn! I would like any input anybody has other ” you could experience any or all of the above or worse (death) as a result of prostate treatment!thank you!
Henry, I can see you are frustrated. Maybe research your options a bit more? I am thinking your wife would not want you to commit suicide. My bet she wants you around irregardless of what this diagnosis may make you deal with. Positive thoughts to you.
henry, I had a gleason score of 7 and a psa of 8.6, I had it robatic surgery and after all tests done on the prostate gland I would not have lasted very long it was an agressave cancer, i had this done about 4 weeks ago and have been able to make love with my wif a couple time since, not quite the same but i.m hoping for improvement, it really boils down to when in our busy scudules to have the time, i still look forward to theses times so really nothing has changed much, still better than dead
Hey Bill, how are you now? From another Bill
Henry,
I hear you and understand where you are coming from. I was diagnosed with a very agressive prostate cancer in Dec 10. I had a robotic prostetectomy. At first I was just grateful to survive but then reality hit. I was wetting my pants, suffered from ED and had pain in my left testicle. Working hard and following my Dr.’s direction, I was able to overcome the incontinence issue. The rest is the same and sometimes I feel as you do but, I still believe there are options to improve my quality of life.
Let me know if you wantto talk
Okay this looks like the place where there might be somebody that can help. PC for 7 year, 5 years ADT. Current PSA 36 2 weeks ago.
Talk to me people – somebody
Ed read your plight I am 7 years fighting the damned thing. Current PSA36 No evidence of metastis
Al
I am 63 y.o. and asymptomatic. Went to Dr for annual exam 10/2/12, PSA 7.5 (up from 5.4 in 2010). Biopsy on 11/22/12, 5 of 6 cores positive for adenocarcinoma, gleason 3+3=6, DRE neg, prostate size 37 cc, one urologist described as low grade, high volume disease. All these signs seem to lead to conflicted staging – cannot decide if I need am high risk that disease outside of my prostate. Any guesses out there.
I have prostate cancer and am being treated with hormone drugs which have controlled
it for 3 years. I have to urinate frequently and have been told by a uraligist that I should
be treated with microwave to shrink my prostate. How effective is this procedure?
I was diagnosed with PCa in July 2012. I foolishly went three years without a PSA test due to lack of insurance and not knowing anything about prostate cancer. I found my PSA was 23, and Gleason score of 9. A bone scan showed mild carcinoma in my bones, a few spots scattered throughout my body. I started hormone treatment in August, a Lupron injection every 6 months. I started taking Casodex as well but found it was affecting my liver readings so I was taken off it. It appears the Lupron is doing its job as my latest PSA readings have been dropping and are now less than 1.