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Global Prostate Cancer Alliance

PROSTATE CANCER NETWORK Join here: https://healthunlocked.com/prostate-cancer-network A friendly, informal atmosphere where we can pick each other’s brains. Your 24 hour online support group. Talking about prostate cancer can be a powerful tool in learning to cope with it. Our community is run by the Prostate Cancer Network of the Global Prostate Cancer Alliance https://healthunlocked.com/prostate-cancer-network

By | February 9th, 2016|Newly Diagnosed|0 Comments

Delusional Advocacy

Over the past few years, I've been taking a hard look at mass screening programs.  Educational surveys showed that almost 40% of participants believed screening to be preventive in that they would actually prevent prostate cancer - that they could stop it from happening, like a vaccine - by screening.  Over 85% believed abnormal screening [...]

By | June 7th, 2012|Activism, Newly Diagnosed, Tools for Activists, Treatment News|0 Comments

Overtreatment epidemic – probably not unique to prostate cancer…

Earlier this year my mom was in a terrible care accident. She miraculously survived with multiple fractures. Were this to have happened to most women her age they would have been a pile of bone dust. In the hospital after the accident they set what bones they could and attached an external fixater on her [...]

By | June 7th, 2012|Activism, Newly Diagnosed, Tools for Activists, Treatment News|0 Comments

“You do things when the opportunities come along. I’ve had periods in my life when I’ve had a bundle of ideas come along, and I’ve had long dry spells. If I get an idea next week, I’ll do something. If not, I won’t do a damn thing.”

Those are the words of Warren Buffet, and from what has been published about his prostate cancer, he might be in a better seat if he was in one of those dry spells re ideas about treatment... and I keep pulling my hair out wondering what national advocacy groups are doing. Will they rise to [...]

By | May 17th, 2012|Activism, Newly Diagnosed, Tools for Activists, Treatment News|0 Comments

why don’t we care?

Just reflecting on an incident last year. I was out for a jog in my neighborhood, I saw a young family out for a walk... always a wonderful thing to see. The young daughter got something in her eye and began to cry. Both parents immediately rushed to her, letting go of the baby stroller [...]

By | May 10th, 2012|Activism, Newly Diagnosed, Tools for Activists, Treatment News|0 Comments

Ignorance trumps many dimensions of social justice

What happened yesterday in NC (passing of NC Amendment 1) is shameful beyond reason. If you claim to be an advocate for men's health and you do not advocate for veterans or if you support anti LGBT legislation you are NOT an advocate for men's health - period.

NIH Conference on Active Surveillance Summary

I'd like to invite everyone to read an article by Gary Schwitzer which nicely summarizes some interesting ideas relating to the concept of Active Surveillance originally posted on healthnewsreviews.org.  Any discussion is very welcome!

By | December 28th, 2011|Activism, Newly Diagnosed, Tools for Activists, Treatment News|1 Comment

PSA + big picture = Men’s Health Night

It's interesting to reflect on the recent USPTF PSA upheaval - and to consider how and why we are here from a position of compassion. Personally, I'm interested and involved because my dad died of aggressive prostate cancer. He was screening - back in 1996 when screening was gaining momentum as a tool to find [...]

By | November 19th, 2011|Activism, Newly Diagnosed, Tools for Activists|1 Comment

USPTF guidelines – please help!

Please submit your comments to the USPTF. We need 30,000 by November http://www.uspreventiveservicestaskforce.org/uspstf_form3/

Topic 3, Multidisciplinary Care

This particular topic may be the most important. A few have tried to put the discussion about its importance on the table (ref. this document published by the AUA back in 2005), but perhaps old habits die hard? General cancer conferences are mandated by the Commission on Cancer (CoC). You can’t be a community cancer [...]