“A Guide for Navigating the First Few Weeks After a Radical Prostatectomy,” by David Sietsema
The days leading up to surgery were fearful for me. I had never had surgery and did not know what to expect. At my hospital, I arrived 2 hours before the surgery. They took blood samples to match against the blood I had donated, ran a short EKG and did a chest x-ray. Then I went back to surgery, where they inserted an IV. The surgeon, anesthesiologist and O.R. nurse all stopped in to see me. I took all my clothes off and donned a hospital gown. After a few minutes, I was wheeled into the O.R. I climbed up on the table myself and lay down. A Guide for Navigating the First Few Weeks After a Radical Prostatectomy by David Sietsema
My prostate cancer was diagnosed at age 48, two years before recommend PSA screening takes place. I had no symptoms other than an elevated PSA and I can only credit its early discovery to an astute and conservative family doctor.
Had he not performed a PSA test, my cancer might have advanced to a more dangerous level before it was discovered. Enough about me. My purpose in writing this guide is to provide specific information to assist post surgical patients during the first few weeks after surgery. I had read a number of books on prostate cancer and did not find any specific discussion of this critical time when questions often arise that needs to be answered quickly.
This guide is only semi-organized with some general headings. I am sure you will find it useful.
Hospital Care and Surgery.
Here is a plea to all family members: Please do not leave your loved one alone in the hospital. I’m not trying to question the quality of care. Mine was very good. But, no matter how good the nursing staff is, they can’t spend all their time with one patient.
Family members need to be there to support their loved one emotionally and to fill in the gaps where the nursing staff is overworked. If you have enough family members, take turns. Spend the night with them, if at all possible, especially the first couple of nights after surgery. My wife spent the first two nights with me and it was of great benefit. The third night, she was home with the flu.
The days leading up to surgery were fearful for me. I had never had surgery and did not know what to expect. At my hospital, I arrived 2 hours before the surgery. They took blood samples to match against the blood I had donated, ran a short EKG and did a chest x-ray. Then I went back to surgery, where they inserted an IV. The surgeon, anesthesiologist and O.R. nurse all stopped in to see me. I took all my clothes off and donned a hospital gown. After a few minutes, I was wheeled into the O.R. I climbed up on the table myself and lay down. That’s the last thing I remember.
Waking up from Surgery.
I do not really remember waking up. I know that I had had a breathing tube but I was never aware of it while it was in me and I never felt any ill effects from it such as a scratchy throat.
I do not really remember being in the recovery room although there may be a couple of faint recollections there. My first real memory of waking up was being in the hospital room with my wife, daughter and father watching over me. I was not hurting and slowly became aware of my body’s physical situation.
I was not in any significant pain. I had support stockings on my legs and on top of these, some air operated devices that were inflating and deflating around my legs to prevent clots from forming. They were removed later in the day but the stockings were kept on for a week.
There was an active IV stick in my hand. It was the same one that was put in before surgery. They were using it to feed me saline, antibiotics, pain killer and anti-nausea medications. I did not experience much nausea but when I did, they had medications that were very effective.
Ihave been trying to find a website that talked about right after the surgery. This one was very helpful
I am 54 and had the prostectomy last March. The pathologist found out there were only a “few cells” that were cancer and nothing more. Good New you say? Think again. I was left with no erections at all, and Cialis, viagra and Livitra do not work even at 40mg dosages. I have intimacy or sex life. Plus, my penis lost 3 inches in actual flaccid length. If I knew then what I knew now, I would have Never had the surgery and preferred to let the disease take it course.. The surgeon lied to me as the outcome as well as the prostate men’s support groups were NOT open about the true results of their surgery.
This is my experience and what I have to say about this Prostate Surgery. Rendering Men to eunuchs is not my idea of treatment. It was suggested to try a penis pump. USELESS, PAINFUL, and it traumatizes the penis causing abnormal shape after the tube is taken off. The pumping process is painful. When the pumping is done, having to SNAP the rubber band/ring around the base of the penis, feels like a SLING SHOT hitting you right in the groin. This they call treatment? It is now post 10 months and I am left with this. I am very athletic. I work out at the gym 4x weekly to keep myself in shape. If any one out there knows of how if it were possible to rehabilitation sexual function please write me
I agree with Keith. My husband had a radical prostatectomy at age 56…10 months ago, and has had to quit work, and has not sat since the surgery. The doctor who did the surgery never said anything about possible NERVE damage…and thus, that is what my husband is left with, and NO ONE will touch him now. I think they are all afraid of a law suit, as his condition is the worst.
We do not want to sue…only get him help. No one knows about Pudendal nerve damage as a result of his prostatectomy…but it is real and does occur. THINK TWICE before doing this surgery. My husband would rather have lived with his cancer.
I am now post one year and a half. No erections of any sort has returned. I am left with a faint orgasm and to achieve it is laborious. I would rather had lived with the cancer. The only one who benefited was the surgeon whose payment I made for the operation paid for his mercedes and vacations. I made attempts at dating and as soon as it is made known of the lack of erections, the date I am with loses interest, quickly.. I do not blame them for feeling the way they do. A urologist talked about a penal implant at the cost of $20,000. I find it interesting insurance pays for a women’s breast implants due to beast cancer but does NOTHING for a man who loses the core of his manhood. Something is wrong about them not giving equal coverage.
Keith , I agree to a point. I`m in the health field so I had access to inside information about my urologist. He came highly reccommended. Although his bedside manner sucks. I should have walked when he didn`t greet me the morning of my procedure . And NEVER saw me until my office vist for follow up. The day after my procedure I was in excruciating pain . His team came around, but had to call him for orders to give meds.. Still he didn`t come in. Needless to say , I blasted him even wrote to the board about his lack of concern.. This man should not be allowed to practice medicine no matter how good he is or how many boards he sits on. it`s all about the money . Now the up side, it`s been 16 months . And granted I have as of yet to have sex, and I do leak. But I`ve found the secret to be masturbation and L- arginine. Forget the pump and pills . The secret is blood flow to the head of the penis. Increase the flow , increase the the erection. Think of it as physical therapy . You break a leg , they send you to physical therapy . Same thing , you have to learn how to use it again…..also a very important think is state of mind. You have to believe this will work. And the less alcohol the better , just relex and enjoy .. trust me it works……
Having had DaVinci Nov2006, I am a long way down the road. Surgery did not kill the cat, Radiotherapy for 9 weeks Jan/Feb 2008, and now Hormone treatment for the rest of my life. SEX, well I have gone from a man to a Eunuch. NONE of the advice prior to surgery was personal and accurate. They leave you to believe that you will come out the other side OK, but they do not define OK. Sex is not everything, but, it is something most men take for granted, until it is too late. Incontinence and impotence are my legacy from wanting to live. I am now 58 years old, and still angry as to why I was not able to seek ” get down and get dirty advice & help ”
I have 5 children, the youngest being 9, so my choice was for them, and my situation has left me sad and lonely. They call it Secret Mens Business ( SMB ) Men do not talk about their health, their fears, and their feelings. I sympathise with Keith, and if he would like to email me, I would be happy to discuss my experiences.
I too have had that bad thought of why didn’t I let it happen, BUT, after 6 years and seeing my children grow up, I know that being selfish was not an option.
To my fellow suvivors, ” keep punching ”
Jack
I to had the robotic radical prostectomy and radiation afterwards since the gleason grade was 4/4 which was aggressive and it had gotten out of the envelope as they say. I also had an epidimitis infection 2weeks after surgery which took 40 days of medication to knock it out of my system. I’m 68 yrs old and had taken prostate supplements for 10 yrs…what a waste of time and money. I work out every day and red and attend meetings for prostate survivors but to date the best advise I can give is to watcht your diet….sugar and anything you eat that turns to sugar feeds the cancer cells in your body. No matter what surgery or radiation you’ve had look into a Holistic approach to detoxifing your body so that it can fight any existing cancer cells floating around in your system.