Patents, Publications and Research

Patents

US Patent # 9,168,002 -October 27, 2015 
A device and method for real time simultaneous measurement of radiation at specific parts of your body. Understanding cumulative radiation exposure in people undergoing ionizing radiation for diagnostics and medical treatment is essential towards reducing secondary tumors from primary radiation therapy.

US Provisional Patent Application No. 62/370,092 – September 7, 2016
Mobile Device Health Monitoring
Cancergraph Symptom and Side Effect recording and reporting mobile app
Patent pending on various aspects and algorithms

Publications and Abstracts

Prostate Cancer in Gay, Bisexual, and Other Men Who Have Sex with Men: A Review
Simon Rosser B.R., Merengwa Enyinnaya, Capistrant Benjamin D., Iantaffi Alex, Kilian Gunna, Kohli Nidhi, Konety Badrinath R., Mitteldorf Darryl, and West William. LGBT Health. January 2016, 3(1): 32-41. doi:10.1089/lgbt.2015.0092.

The effects of radical prostatectomy surgery on the sexual functioning and sexualities of gay and bisexual men in the USA: Qualitative results from the Restore study.
Rosser B.R.S., Iantaffi, A., Capistrant, B.D., DeWitt J., Johnson, D., Kilian, G.R., Kohli, N., Konety, B.R.,   Merengwa E., Mitteldorf D., West, W. (2015).  Proceedings of the International Academy of Sex Research Meeting, Toronto, Canada, August 9-12, 2015.

What Gay and Bisexual Men Treated for Prostate Cancer Are Offered and Attempt as Sexual Rehabilitation for Prostate Cancer: Results from the Restore Study.
Simon Rosser B.R., Merengwa Enyinnaya, Capistrant Benjamin D., Iantaffi Alex, Kilian Gunna, Kohli Nidhi, Konety Badrinath R., Mitteldorf Darryl, and West William. Journal of Urology Practice April, 2017  http://dx.doi.org/10.1016/j.urpr.2017.04.002

Caregiving and social support for gay and bisexual men with prostate cancer
Capistrant, B. D., Torres, B., Merengwa, E., West, W. G., Mitteldorf, D. & Rosser, B. R. S. Nov 1 2016 In : Psycho-Oncology. 25, 11, p. 1329-1336 8 p.

Prostate cancer in gay, bisexual, and other men who have sex with men: A review.
Rosser, B. R. S., Merengwa, E., Capistrant, B. D., Iantaffi, A., Killian, G., Kohli, N., Konety, B. R., Mitteldorf, D., West, W. (2016). LGBT Health, 3(1), 32–41.

The effects of radical prostatectomy on gay and bisexual men’s mental health, sexual identity and relationships: qualitative results from the restore study
Rosser, B. R. S., Capistrant, B., Torres, B., Konety, B., Merengwa, E., Mitteldorf, D. & West, W. Sep 1 2016 In : Sexual and Relationship Therapy. p. 1-16 16 p.
and
Aug 1 2016 In : Sexual and Relationship Therapy. p. 1-14 14 p.

Online versus traditional methods to recruit older gay and bisexual men treated for prostate cancer: Findings from the Restore study
Rosser, B.R.S. & Capistrant, B.D. (2016).  Journal of Medical Internet Research, 2(2), e9.

Poster Presentation and Abstract ASCO-GU 2016: Understanding prostate cancer survivorship relative to co-habitation.
Mitteldorf, D. ..J Clin Oncol 34, 2016 (suppl 2S; abstr 253)

Book Chapter: The effects of radiation therapy for prostate cancer on gay and bisexual men’s mental health, sexual functioning and behavior, sexual identity and relationships: Qualitative results from the Restore study. 
West, W.G., Rosser, B.R.S., Capistrant, B.D. Torres, B., Konety, B.R., Mitteldorf D., Ross, M.W., Talley, C. (2017). In J. Ussher, J. Perz, B.R.S. Rosser (eds). Gay and Bisexual Men Living with Prostate Cancer: From Diagnosis to Recovery. New York, NY: Harrington Park Press.

Book Chapter: Validating the “Spouse EPIC” measure for use with gay couples: How partners perceive symptoms in gay and bisexual men with prostate cancer.
Capistrant, B.D., Rosser, B.R.S., Lesher, L., Kohli, N., Konety, B.R., Merengwa, E., Mitteldorf D., Ross, M.W., Talley, K.M., West, W., (2017) Validating the “Spouse EPIC” measure for use with gay couples: How partners perceive symptoms in gay and bisexual men with prostate cancer.  In J. Ussher, J. Perz, B.R.S. Rosser (eds). Gay and Bisexual Men Living with Prostate Cancer: From Diagnosis to Recovery. New York, NY: Harrington Park Press.

Book Chapter: Malecare: Lessons Learned From Twenty Years of Gay Prostate Cancer Support Groups 
Mitteldorf D. (2017) In J. Ussher, J. Perz, B.R.S. Rosser (eds). Gay and Bisexual Men Living with Prostate Cancer: From Diagnosis to Recovery. New York, NY: Harrington Park Press.

Book Chapter: The effects of radiation therapy for prostate cancer on gay and bisexual men’s mental health, sexual functioning and behavior, sexual identity and relationships: Qualitative results from the Restore study. 
West, W.G., Rosser, B.R.S., Capistrant, B.D. Torres, B., Konety, B.R., Mitteldorf D., Ross, M.W., Talley, C. (2017).  In J. Ussher, J. Perz, B.R.S. Rosser (eds). Gay and Bisexual Men Living with Prostate Cancer: From Diagnosis to Recovery. New York, NY: Harrington Park Press.

Abstract ASCO Annual Meeting 2016: Treatment disparities between heterosexual and gay and bisexual men diagnosed with prostate cancer.
Mitteldorf, D. ..J Clin Oncol 34, 2016 (suppl; abstr e16548)

Abstract: Social support, caregiving and cancer outcomes among gay and bisexual men with prostate cancer
Capistrant, B. D., Lesher, L., Kohli, N., Merengwa, E., West, W., Mitteldorf, D., & Rosser, B. R. S. (2016).. The Gerontologist, 56(Suppl 3), 459

Abstract: The effects of prostate cancer treatment on the sexual behavior of gay and bisexual men: Key results from the Restore study
Rosser, B. R.S. and Capistrant, B.D. (2017) . Abstracts of the Opportunity Conference Advancing LGBTQ Health, St. Paul, MN: February 27-28.

Health-Related Quality of Life, Psychological Distress, and Sexual Changes Following Prostate Cancer: A Comparison of Gay and Bisexual Men with Heterosexual Men.
Ussher JM, Perz J, Kellett A, Chambers S, Latini D, Davis ID, Rose D, Dowsett GW, Williams S.
J Sex Med. 2016 Mar;13(3):425-34. doi: 10.1016/j.jsxm.2015.12.026.

Flexibility in Men’s Sexual Practices in Response to Iatrogenic Erectile Dysfunction after Prostate Cancer Treatment.
Dowsett GW, Lyons A, Duncan D, Wassersug RJ.
Sex Med. 2014 Aug;2(3):115-20. doi: 10.1002/sm2.32.

Research Projects

Molecular Oncology Project
Marketing new tests and diagnostics requires understanding the semiotics of patient appreciation of novel health opportunities.  Our first phase involved accruing 200 prostate cancer patients for a free in-depth molecular oncology testing and consultation, which Malecare conducted in collaboration with Massive Bio.   During phase two, Malecare conducted in-depth interviews with these patients regarding their experience with our molecular oncology testing and consultation. From these interviews, Malecare will discover how to communicate the value of new testing and consultant opportunities to prostate cancer patients.

Understanding the Effects of Prostate Cancer on Gay and Bisexual Men
Start/end date: 9/16/14 → 8/31/17 NIH funded R21

Facing Cancer Alone
Malecare conducted the first large scale survey (N=1799) to understand what if any benefits are accrued by co-habitation to treatment compliance, quality of life and psycho-social stability for men diagnosed with prostate cancer.  This research will be presented during ASCO-GU January 2016.

My Prostate Cancer Experience
Malecare completed a N=1268 survey of men diagnosed with prostate cancer, exploring their day to day experience managing side effects, their experience specific advanced stage treatments and their relationship with their Doctors, across the continuum of their treatment experience.  This survey also discovers significant disparities in experience across the age of diagnosis, race, gender and sexual identity.

Better Ask
Malecare’s research study (N=622) investigated the quality of the patient-doctor consultation during prostate cancer treatment.  We discovered how patients and doctors ask and respond to questions during their prostate cancer consultation. We also investigated how patients spend their “waiting room” time.

The Restore Study
Funded by the National Cancer Institute at NIH, Malecare in collaboration with the University of Minnesota investigated how prostate cancer treatment affects gay and bisexual men, partners, and family and friends.  The study focused on how different treatments affect sexual functioning, gay sex, and gay relationships. We will use this information to design better sexual rehabilitation interventions for gay and bisexual men.  Completed in November, 2015, we achieved the largest and most comprehensive survey of gay and bisexual men with prostate cancer ever conducted.

Twice As Many
Malecare interviewed men of African Descent diagnosed with prostate cancer and spouses to understand the psycho-social dimensions regarding prostate cancer killing African American men at 2.4 times the rate as it kills Caucasian men.   Malecare developed new methods of messaging to African American men diagnosed with prostate cancer and dispelled several myths about African American men and clinical trial accrual.

Using Social Media
Malecare surveyed 634 men diagnosed with prostate cancer to understand how they use and value information derived from social media.